Formerly known as Complementary and Alternative Medicine in Parkinson's Disease
Who Should Participate?
Power in Numbers
The more people participate, the more likely the results are to reflect the true population. When thousands of people pool their data together, the MVP Study can identify trends in the population that are not visible to the individual.
All forms of Parkinsonism & Idiopathic PD
Individuals with any form of parkinsonism, or a reason to suspect they may be at increased risk of parkinsonism, are invited to participate.
Parkinson’s disease (PD) - Parkinsonism - Multiple system atrophy (MSA)- Progressive Supranuclear palsy (PSP)- Corticobasal degeneration (CBGD) - Dementia with Lewy bodies (DLB) - Neurodegenerative disorder Not Otherwise Specified (Other)
Idiopathic Parkinson's Disease
No PD diagnosis, possible prodromal period - Individuals at above-average risk of Parkinsonism, e.g. include family history of parkinsonism, known gene carrier for a Parkinson-related disease, early-life or current dairy intake, history of head trauma, history of melanoma/ skin cancer, known pesticide exposure, acting out dreams (REM sleep behavior disorder), loss of smell, diabetes, irritable bowel syndrome, or constipation.
Prodromal Parkinson / Pre-motor Parkinson
People have Parkinsonism for 10-20 years before their motor symptoms lead to a diagnosis. There are a growing number of ways people are alerting themselves to parkinsonism in the early years, before there are any motor symptoms.
Examples of reasons an individual may consider him/herself at risk: family history of parkinsonism, known gene carrier for a Parkinson-related disease, early-life or current dairy intake, history of head trauma, history of melanoma/ skin cancer, known pesticide exposure, history of well-water intake, acting out dreams (REM sleep behavior disorder), loss of smell, diabetes, irritable bowel syndrome, or constipation.
Surveys every 6 months
Participants must agree to fill out a survey every six months for ten years. You may stop participating at any time.